Who we are
At Be Visible, our leadership is defined by lived experience, professional expertise, and an unwavering commitment to the rare disease community.
We are parents, healthcare operators, creative leaders, and advocates united by a shared mission: to ensure there are no hidden causes.
Our Board
Rachel Forst Co-Founder & Board Member
Tyler Forst Co-Founder & Board Member
Tyler Forst Co-Founder & Board Member
Rachel is the proud mother of twin daughters diagnosed with STXBP1 and a driving creative force behind Be Visible. With an extensive career leading design and creative operations for global brands including Nike, Tom Ford, Michael Kors, and Amazon, she brings deep expertise in storytelling, visual identity, and strategic innovation. Rache
Rachel is the proud mother of twin daughters diagnosed with STXBP1 and a driving creative force behind Be Visible. With an extensive career leading design and creative operations for global brands including Nike, Tom Ford, Michael Kors, and Amazon, she brings deep expertise in storytelling, visual identity, and strategic innovation. Rachel is dedicated to transforming how rare conditions are perceived, ensuring that every affected family is seen, celebrated, and supported
Tyler Forst Co-Founder & Board Member
Tyler Forst Co-Founder & Board Member
Tyler Forst Co-Founder & Board Member
Tyler is a healthcare consultant, operator, and childhood cancer survivor who brings firsthand resilience and deep health systems expertise to Be Visible. Holding a Master of Health Administration, he has spent his career optimizing healthcare operations and navigating complex delivery networks. As a father to twins navigating STXBP1, Tyl
Tyler is a healthcare consultant, operator, and childhood cancer survivor who brings firsthand resilience and deep health systems expertise to Be Visible. Holding a Master of Health Administration, he has spent his career optimizing healthcare operations and navigating complex delivery networks. As a father to twins navigating STXBP1, Tyler combines strategic operational leadership with passionate advocacy to accelerate translational research, eliminate barriers to care, and ensure no family walks the unknown alone.
Madeline Klineman Board Member
Tyler Forst Co-Founder & Board Member
Madeline Klineman Board Member
Madeline is a healthcare professional operating at the intersection of technology and behavioral health. Specializing in leveraging digital tools and innovative systems to expand access to mental healthcare, she understands the profound emotional and psychological realities facing patient communities. Madeline brings valuable clinical and
Madeline is a healthcare professional operating at the intersection of technology and behavioral health. Specializing in leveraging digital tools and innovative systems to expand access to mental healthcare, she understands the profound emotional and psychological realities facing patient communities. Madeline brings valuable clinical and technological insight to Be Visible, championing comprehensive, compassionate support systems for rare disease families and caregivers.